A Day with Danny — Technology and Cerebral Palsy

A Day with Danny — Technology and Cerebral Palsy


[soft music] Daniel Stickney: Wake up. Stanford Stickney: You want to
write something to Dad? Why don’t you write
something to Dad, or write about your experience
right now? Just start talking. [music continues] Daniel Stickney: Today was
a really wonderful day. Stanford Stickney: Period. Daniel Stickney: Period. [soft rustling] Malo: Okay, whoa, whoa. Daniel Stickney: Morning. You’re gonna watch me
film a speech today. [indistinct speech] I need my phone. Take the wrapper off… [microwave beeps] Hey. Malo: There you are. Daniel Stickney:
Five-second rule. Dyer Stickney:
It’s very important to note that up until
a few years ago, Daniel really didn’t know
he had a disability. [gentle music] We did everything together,
very inclusive. Stanford Stickney:
And there’s photos of us growing up, and we lived
up in the mountains, and there’s a mudslide,
and I’m ten; Kiara and Danny
are around seven. And we’re pulling Danny up
with a rope, and he’s in
a little yellow jacket, up the mudslide. Everything that we’ve done, Danny does. Malo: He orders his own ride. Daniel Stickney:
I order my own ride. Malo: So he schedules a ride, and then we usually– sometimes we walk
right here. Daniel Stickney:
Call Ben. Dyer Stickney: He was never
supposed to be able to be out of a fetal position. We wouldn’t accept that. Use of his hands
were not gonna happen. We were not able
to accept that. [gentle music] [phone chimes] Daniel Stickney:
Call Ben. Siri: Calling Ben. Daniel Stickney:
Hey, Ben. I’m leaving the apartment
right now. I’ll be at West Valley soon. I’m on the freeway. All right, bye. I usually let them know
that I’m coming. Lamoso: Definitely
Daniel’s strengths are his communication skills and his interpersonal skills. I think the challenges
are definitely the vision
and the mobility. He can see to his right for a 45-degree angle. He doesn’t see
out of the left eye. But it changes. So what he might be able to see
one day, he might not be able
to see the next. It could change
from moment to moment. [phone chiming] Daniel Stickney:
Call Cypress Senior Center. [phone chimes] I’m just gonna double-check what time
we’re gonna be there. Siri: I found seven places. Tap the one
you want to call. Daniel Stickney:
Call. [phone chimes] Call Ben. Ben,
we’re on Fruitdale Avenue. Fruitdale Avenue,
right by the school. Malo: [speaking indistinctly] Lamoso: So what we do
in a program like mine is, we teach students
life skills… Daniel Stickney:
Beep, beep, beep, beep. Lamoso: Learning how
to ride the bus, helping them
find employment– everything that has to do
with becoming as independent as possible. We do what’s called, like,
you know, partial participation, so he tries to do
as much as he can on his own, but we do need to step in,
so, you know, putting on the glasses– we’re helping him with
all of those types of things. Okay.
Let’s roll. [phone chimes] Daniel Stickney:
Check email. [phone chimes] Siri: You have at least
25 emails since… Lamoso: We are doing
your emails first. We’re checking to see
if there’s any new ones. Daniel Stickney:
I need to get ahold of Greg. Lamoso:
Why don’t you email me? “Hi, Ben.
Don’t forget. We need to get ahold of Greg
this week.” He likes to do these speeches
and presentations all over the community, and he’s made
all of these contacts, and I would love for him
to be able to get to a point where he’s really running it
himself, and he’s able
to open an email easily, respond to it, delete the ones
he doesn’t need anymore. Daniel Stickney:
Hi, Ben. We need to get ahold of Greg… Lamoso:
When he sends an email, he needs to just be able to hear
that email back to him so that he can edit it. Siri: Here’s your message
to Ben. Ready to send it? Daniel Stickney:
Yes. Lamoso:
So what we need to do next is, we need to decide
which slideshow you want to do for when you go over
to the senior center, right? Daniel Stickney:
Yeah. Lamoso: So come on over
to the computer. And all I want to do right now
is practice two things. One–can you go backwards
and forwards on the slide? Daniel Stickney:
Yeah. Lamoso: Two–can you listen
to the slide and talk about it
without just repeating what was said? Daniel Stickney:
Okay. Lamoso: Okay.
There you are. He uses remote controls to operate his PowerPoint
presentations, and we adapt those
by adding raised stickers, so he knows, like,
the hard one is forward; the soft one’s backwards. Daniel Stickney:
People can walk, but I’m in a wheelchair. Lamoso: All right. Daniel Stickney:
Uh… Lamoso:
Can you share with me some other things that
you remember about what CP is? Daniel Stickney:
People with CP need the support… Lamoso: With… Daniel Stickney:
With… everything
in their daily life. Lamoso: Well, with movement,
right? Daniel Stickney:
With movement. Lamoso: Right. Good. Okay,
you’re gonna do awesome. What we’ll do is,
when we get there, we’re gonna set up
your wireless mic, and you’re gonna be
the star of the show. [cheerful music] woman: Hello, everybody. Today,
we have a special presentation. We have Daniel Stickney, and he’s gonna be doing
a presentation on wheelchair awareness, so if everybody
could welcome Daniel, let’s give him
a round of applause. [cheers and applause] Daniel Stickney:
All right. Can everybody hear me? Ah! man: You know,
you’re gonna hold this with your hand
and rock with it. Daniel Stickney:
Ladies and gentlemen, boys,
and all ages… [laughter] Today I’m going to talk about
wheelchairs. My body does not function
like you can with your body;
you can use my feet– the wheelchair is my feet, ladies and gentlemen. The wheelchair gets me around
where I want to go, from point A to point B. [percussive music] man: You want another one,
or you good? woman: How often
do you ride the bus? Daniel Stickney:
Every single day. Okay! We’re getting off, guys. Stanford Stickney:
So how Daniel sees is, it’s a sliver
out of his right eye. And it’s like,
light on, light off, light on, light off,
light on, light off. He can see; he can’t.
See; can’t. See; can’t. Lamoso: Can you hear
the bird thing? The sound of–
sounds like a bird chirping? Watch out.
You’re about to– No, no, no, no, no.
You’re about to go way off. Stanford Stickney:
And so, often, if objects
aren’t color-coded or there’s not someone around
to say, “Hey, look out for the curb,” Daniel will easily
go through the curb. Collins:
We’ll usually be, like, walking around, shopping, or something like that. If I’m alone, you know,
with Danny and I don’t really
have any initiative of what to do, so I usually
have to ask him. Daniel Stickney:
Hello. Can I have a Coke? Make it three. It’s my treat! [laughter] Collins:
Technically, I guess you have less options, but at the same time, like, I don’t really feel,
honestly, like there is
much of a difference when hanging out with Danny. Daniel Stickney:
[indistinct] Collins: [laughs] Stanford Stickney:
Because he is cortically visually impaired
and is legally blind, he has to take everything
at face value. Daniel Stickney:
And the receipt? woman: You want a receipt? Daniel Stickney:
Yes, please, ma’am. Stanford Stickney:
Making just a simple transaction
is an art form. Daniel Stickney:
Stan, please, can you help me? Stanford Stickney:
Yes, I can. All right, buddy. [laughter] Wow, Daniel. Kelsey O’Maley:
We’re both busy, so we don’t get a lot of time
to hang out. Kimberlee O’Maley:
But do you text and email and talk? Kelsey O’Maley:
But we–oh, yeah. We talk.
He–he– He calls me at least
five times a day. [laughter] If not more. [laughter] In a row! [laughter] [all laughing] [gentle music] Dyer Stickney: Right now,
we’re concentrating on what Daniel can do
with technology. We’re at a perfect time,
at a perfect moment, in a very imperfect world. So as technology unfolds, it’s amazing to what doors
are opening to Daniel that were just closed
a few years ago. Daniel Stickney:
[sobs] Stan? Stanford Stickney:
Okay, uh… Daniel Stickney:
Need to go back home. Stanford Stickney: Hold on.
Daniel Stickney: No! Stanford Stickney:
I mean, the truth is, Danny can’t do
a lot of things. Daniel Stickney:
Need to go to the bathroom. Stanford Stickney:
I mean, when you think about it, Danny is completely dependent
on someone for 99.9% of everything… Daniel Stickney:
I got to go to the bathroom! Stanford Stickney:
From using the restroom to eating
to bathing to clothing. Daniel Stickney:
Been a long day… Stanford Stickney:
And so that’s what makes it so important, those few things
that Danny can do. Daniel Stickney: Today was
a really wonderful day. [gentle music] I had a fun time
spending time with my friends. [laughter] I went on the bus today, bus 57. I got to spend time
with Patrick Collins today. [laughter] I gave a presentation. I spoke about
wheelchair awareness and my cerebral palsy. Don’t limit yourself just because
you have a disability. [cheers and applause] man: Can I shake your hand? Daniel Stickney:
It was really a fun and rewarding experience. woman: That would be cool. Daniel Stickney:
I’m so thankful… [whispering]
I lost my train of thought. Stanford Stickney:
That’s okay. Daniel Stickney:
[sighs] [computer pings]

Danny Hutson

12 thoughts on “A Day with Danny — Technology and Cerebral Palsy

  1. I met Danny and Stanford at West Valley College in the Adapted PE program. They brighten my day! I look forward to getting to know both of them and share my passion for Assistive Technology.

    I had a corneal transplant and rely on technology to help me to read better.

    I'm so blessed that we were introduced and I look forward to learning more about the technology you use. This Documentary is a real eye-opener.

    I am so glad our paths crossed! I hope we can meet in the community soon.

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